Paediatric patient and family-centred care: ethical and legal issues / edited by Randi Zlotnik Shaul.

Springer eBooks

Preface -- Acknowledgements -- Notes on Contributors -- Chapter 1: Introduction -- Part I: Introduction to Patient and Family-Centred Care -- Chapter 2: Paediatric Patient-Centred Care: Evidence and Evolution; David B. Nicholas, Krista Keiltyand Karima Karmali -- Chapter 3: A Canadian Perspective on a Child’s Consent to Research Within a Context of Family-Centred Care: From Incompatibility to Synergy; Linda Sheahan, Michael Da Silva, Christine Czoli and Randi Zlotnik Shaul -- Chapter 4: Resource Allocation in Paediatric Patient and Family-Centred Care; Jennifer L. Gibson -- Part II: Legal, Ethical and Cultural Considerations -- Chapter 5: Culture, Religion and Family-Centred Care: Rani H. Srivastava -- Chapter 6: Ethical and Legal Issues in Patient and Family-Centred Care: Canadian First Nations, Métis and Inuit People; Julija Kele?evi? -- Chapter 7: Accounting for the Family in Law: An Impartial but not Impersonal Point of View; Lee A. Chapman -- Chapter 8: Legal Considerations in Paediatric Patient and Family-Centred Healthcare; Joan M. Gilmour -- Part III: Implementation and Lived Experience --  Chapter 9: Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care; Krista Keilty, David B. Nicholas, Karen Sappleton and Karima Karmali -- Chapter 10: The Effect of Patient and Family-Centred Care (PFCC) Delivery Model on Paediatrics at the Thunder Bay Regional Health Sciences Centre; Bonnie Nicholas -- Chapter 11: Creating Partnerships for Life: One Family’s Story of Paediatric Patient and Family-Centred Paediatric Care; Janis Purdy -- Chapter 12: Supporting the Developing Autonomy of Youth Patients: Reflections on the Role of Healthcare Providers; Christy Simpson -- Part IV: In Context -- Chapter 13: Participation in Paediatric Research Studies; Nancy Walton -- Chapter 14: Clinical Genetics Practice: Integrating Paediatric Patient and Family-Centred Care; Cheryl Shuman and Riyana Babul-Hirji -- Chapter 15: End-of-Life Decision-Making in the Neonatal Intensive Care Unit: Serving the Best Interests of the Newborn Within a Patient and Family-Centred Care Framework ; Jonathan Hellman -- Chapter 16: Legal and Ethical Issues in Child-and Family-Centred Care:Transplantation; Rebecca A. Greenberg, Michael Campbell and Linda Wright -- Chapter 17: Patient and Family-Centred Care: Critical Partnerships When Treating Adolescent Anorexia Nervosa; Lori d’Agincourt-Canning, Lucinda Kunkel and Karen Dixon -- Chapter 18: Lost in Transition: Legal and Ethical Approaches When Applying Patient- and Family-Centred Care to Adolescents With Disabilities; Maria L.Z. McDonald and Lucie Wade -- Chapter 19: Ethical Conflicts That may Arise When Caring for Dying Children; Christine Newman, Adam Rapoport and Gurjit Sangha.

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