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020 _a9780387938721
_99780387938721
024 7 _a10.1007/9780387938721
_2doi
035 _avtls000333399
039 9 _a201509030802
_bVLOAD
_c201404130430
_dVLOAD
_c201404092220
_dVLOAD
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040 _aMX-SnUAN
_bspa
_cMX-SnUAN
_erda
050 4 _aQH332
100 1 _aSolbakk, Jan Helge.
_eeditor.
_9305734
245 1 4 _aThe Ethics of Research Biobanking /
_cedited by Jan Helge Solbakk, Søren Holm, Bjørn Hofmann.
264 1 _aBoston, MA :
_bSpringer US :
_bImprint: Springer,
_c2009.
300 _axviii, 358 páginas 3 ilustraciones
_brecurso en línea.
336 _atexto
_btxt
_2rdacontent
337 _acomputadora
_bc
_2rdamedia
338 _arecurso en línea
_bcr
_2rdacarrier
347 _aarchivo de texto
_bPDF
_2rda
500 _aSpringer eBooks
505 0 _aResearch Biobanking: The Traditional Approach -- Consent to Biobank Research: One Size Fits All? -- What No One Knows Cannot Hurt You: The Limits of Informed Consent in the Emerging World of Biobanking -- Users and Uses of the Biopolitics of Consent: A Study of DNA Banks -- Information Rights on the Edge of Ignorance -- The Dubious Uniqueness of Genetic Information -- Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy -- Biobanking and Disclosure of Research Results: Addressing the Tension Between Professional Boundaries and Moral Intuition -- Biobanks and Our Common Good -- Trust, Distrust and Co-production: The Relationship Between Research Biobanks and Donors -- Scientific Citizenship, Benefit, and Protection in Population-Based Research -- Research Biobanking: Towards a New Conceptual Approach -- Mapping the Language of Research Biobanking: An Analogical Approach -- The Use of Analogical Reasoning in Umbilical Cord Blood Biobanking -- The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use -- The Art of Biocollections -- The Health Dugnad: Biobank Participation as the Solidary Pursuit of the Common Good -- Embodied Gifting: Reflections on the Role of Information in Biobank Recruitment -- Conscription to Biobank Research? -- Ownership Rights in Research Biobanks: Do We Need a New Kind of ‘Biological Property’? -- Legal Challenges and Strategies in the Regulation of Research Biobanking -- Annexation of Life: The Biopolitics of Industrial Biology -- In the Ruins of Babel: Should Biobank Regulations be Harmonized?.
520 _aThe Ethics of Research Biobanking investigates some of the ethical, legal and social challenges raised by research biobanking. In the first part of the book the authors pursue the different regulatory options envisaged within a normative terrain dictated by different conceptions and interpretations of the informed consent doctrine. In the second part a completely new approach is explored. The authors investigate the conceptual potential of different analogies outside medical research used to depict people's change and exchange of valuables between themselves and a common institution. The book is aimed at both academic and professional audiences (biobank curators, biobank researchers, ethicists, gene-epidemiologists, health law experts, philosophers, social scientists and advanced and graduate students in the relevant disciplines) as well as health and research regulators, ministries, politicians and the general public.
590 _aPara consulta fuera de la UANL se requiere clave de acceso remoto.
700 1 _aHolm, Søren.
_eeditor.
_9305735
700 1 _aHofmann, Bjørn.
_eeditor.
_9305736
710 2 _aSpringerLink (Servicio en línea)
_9299170
776 0 8 _iEdición impresa:
_z9780387938714
856 4 0 _uhttp://remoto.dgb.uanl.mx/login?url=http://dx.doi.org/10.1007/978-0-387-93872-1
_zConectar a Springer E-Books (Para consulta externa se requiere previa autentificación en Biblioteca Digital UANL)
942 _c14
999 _c280654
_d280654