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020			_a9789400716735 _99789400716735
024	7		_a10.1007/9789400716735 _2doi
035			_avtls000366629
039		9	_a201509030704 _bVLOAD _c201405070429 _dVLOAD _y201402251341 _zstaff
040			_aMX-SnUAN _bspa _cMX-SnUAN _erda
050		4	_aRD120.6
100	1		_aLenk, Christian. _eeditor. _9326744
245	1	0	_aBiobanks and Tissue Research : _bThe Public, the Patient and the Regulation / _cedited by Christian Lenk, Judit Sándor, Bert Gordijn.
264		1	_aDordrecht : _bSpringer Netherlands, _c2011.
300			_aviii, 238 páginas _brecurso en línea.
336			_atexto _btxt _2rdacontent
337			_acomputadora _bc _2rdamedia
338			_arecurso en línea _bcr _2rdacarrier
347			_aarchivo de texto _bPDF _2rda
490	0		_aThe International Library of Ethics, Law and Technology, _x1875-0044 ; _v8
500			_aSpringer eBooks
505	0		_aBiobanks, tissue research and the public -- Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom, Julie Kent, Ruud ter Meulen -- Biobanks and research: scientific promise and regulatory challenge, Bernice S. Elger, Nikola Biller-Andorno.- A sense of entitlement: individual vs. public interest in human tissue, Nils Hoppe -- Social aspects of biobanking: Beyond the public/private distinction and  inside the relationship between the body and identity  Federico Neresini -- The Rights of donors and patients -- One sample, one share! A proposal to redress an inequity with equity , Jasper A. Bovenberg -- Research on human biological materials: What consent is needed, and when. Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Jurate Serepkaite -- Reconsidering consent and biobanking, Emma Bullock, Heather Widdows -- What’s wrong with forensic uses of biobanks?, Claudio Tamburrini  Regulation of tissue research -- A unified European approach on tissue research and biobanking? A comparison, Katharina Beier, Christian Lenk -- Ireland and the United Kingdom’s approaches to regulation of research involving human tissue, Elizabeth Yuko, Adam McAuley, Bert Gordijn -- Legal and ethical aspects of biobanks for research in the European-Mediterranean area, Renzo Pegoraro, Allesandra Bernardi, Fabrizio Turoldo -- The circulation of human body parts and products: when exclusive property rights mask the issue of access, Florence Bellivier, Christine Noiville -- The question of anonymity and privacy in biobanking, Judit Sándor, Petra Bárd.
520			_aThe research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
590			_aPara consulta fuera de la UANL se requiere clave de acceso remoto.
700	1		_aSándor, Judit. _eeditor. _9353081
700	1		_aGordijn, Bert. _eeditor. _9310021
710	2		_aSpringerLink (Servicio en línea) _9299170
776	0	8	_iEdición impresa: _z9789400716728
856	4	0	_uhttp://remoto.dgb.uanl.mx/login?url=http://dx.doi.org/10.1007/978-94-007-1673-5 _zConectar a Springer E-Books (Para consulta externa se requiere previa autentificación en Biblioteca Digital UANL)
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999			_c311734 _d311734