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020 _a9789400716735
_99789400716735
024 7 _a10.1007/9789400716735
_2doi
035 _avtls000366629
039 9 _a201509030704
_bVLOAD
_c201405070429
_dVLOAD
_y201402251341
_zstaff
040 _aMX-SnUAN
_bspa
_cMX-SnUAN
_erda
050 4 _aRD120.6
100 1 _aLenk, Christian.
_eeditor.
_9326744
245 1 0 _aBiobanks and Tissue Research :
_bThe Public, the Patient and the Regulation /
_cedited by Christian Lenk, Judit Sándor, Bert Gordijn.
264 1 _aDordrecht :
_bSpringer Netherlands,
_c2011.
300 _aviii, 238 páginas
_brecurso en línea.
336 _atexto
_btxt
_2rdacontent
337 _acomputadora
_bc
_2rdamedia
338 _arecurso en línea
_bcr
_2rdacarrier
347 _aarchivo de texto
_bPDF
_2rda
490 0 _aThe International Library of Ethics, Law and Technology,
_x1875-0044 ;
_v8
500 _aSpringer eBooks
505 0 _aBiobanks, tissue research and the public -- Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom, Julie Kent, Ruud ter Meulen -- Biobanks and research: scientific promise and regulatory challenge, Bernice S. Elger, Nikola Biller-Andorno.- A sense of entitlement: individual vs. public interest in human tissue, Nils Hoppe -- Social aspects of biobanking: Beyond the public/private distinction and  inside the relationship between the body and identity  Federico Neresini -- The Rights of donors and patients -- One sample, one share! A proposal to redress an inequity with equity , Jasper A. Bovenberg -- Research on human biological materials: What consent is needed, and when. Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Jurate Serepkaite -- Reconsidering consent and biobanking, Emma Bullock, Heather Widdows -- What’s wrong with forensic uses of biobanks?, Claudio Tamburrini  Regulation of tissue research -- A unified European approach on tissue research and biobanking? A comparison, Katharina Beier, Christian Lenk -- Ireland and the United Kingdom’s approaches to regulation of research involving human tissue, Elizabeth Yuko, Adam McAuley, Bert Gordijn -- Legal and ethical aspects of biobanks for research in the European-Mediterranean area, Renzo Pegoraro, Allesandra Bernardi, Fabrizio Turoldo -- The circulation of human body parts and products: when exclusive property rights mask the issue of access, Florence Bellivier, Christine Noiville -- The question of anonymity and privacy in biobanking, Judit Sándor, Petra Bárd.
520 _aThe research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.  
590 _aPara consulta fuera de la UANL se requiere clave de acceso remoto.
700 1 _aSándor, Judit.
_eeditor.
_9353081
700 1 _aGordijn, Bert.
_eeditor.
_9310021
710 2 _aSpringerLink (Servicio en línea)
_9299170
776 0 8 _iEdición impresa:
_z9789400716728
856 4 0 _uhttp://remoto.dgb.uanl.mx/login?url=http://dx.doi.org/10.1007/978-94-007-1673-5
_zConectar a Springer E-Books (Para consulta externa se requiere previa autentificación en Biblioteca Digital UANL)
942 _c14
999 _c311734
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