000			03174nam a22003375i 4500
001			325850
003			MX-SnUAN
005			20160429161813.0
007			cr nn 008mamaa
008			160111s2015 ne | s |||| 0|eng d
020			_a9789401795739 _9978-94-017-9573-9
035			_avtls000426125
039		9	_y201601111138 _zstaff
050		4	_aQH332
245	1	0	_aEthics, law and governance of biobanking : _bnational, european and international approaches / _cedited by Deborah Mascalzoni.
264		1	_aDordrecht : _bSpringer Netherlands : _bSpringer, _c2015.
300			_aviii, 277 páginas :
336			_atexto _btxt _2rdacontent
337			_acomputadora _bc _2rdamedia
338			_arecurso en línea _bcr _2rdacarrier
347			_aarchivo de texto _bPDF _2rda
490	0		_aThe International Library of Ethics, Law and Technology, _x1875-0044 ; _v14
500			_aSpringer eBooks
505	0		_aIntroduction; Deborah Mascalzoni -- Biobanks: a definition; Barbara Parodi -- A participatory space beyond the "autonomy versus property" dichotomy; Mariachiara Tallacchini -- Intellectual Property and Biobanks; Naomi Hawkins -- Consent, Privacy and Property in the Italian Biobanks Regulation: A Hybrid Model within EU?; Matteo Macilotti, Simone Penasa, Marta Tomasi -- Data Protection Principles and Research in the Biobanks Age; Roberto Lattanzi -- The New General Data Protection Regulation – where are we are and where might we be heading?; Jane Reichel and Anna-Sara Lind -- The Tension between Data Sharing and the Protection of Privacy in Genomics Research; Jane Kaye -- Incidental findings: the time is not yet ripe for a policy for biobanks; Jennifer Viberg, Mats G. Hansson, Sophie Langenskiöld, Pär Segerdahl -- Biobanking across borders: the challenges of harmonization; Ruth Chadwick, Heather Strange -- Governing Biobanks Through A European Infrastructure; Emmanuelle Rial-Sebbag, Anne Cambon-Thomsen -- EU governance for research and ethics in biobanks; Jane Reichel -- A Bold Experiment: Iceland’s Genomic Venture ; David Winickoff -- The Estonian Genome Center, University of Tartu; Aime Keis -- The management of the ethical aspects of a local mental diseases biobank for research purposes. An Italian experience; Corinna Porteri -- Biobank governance in Spain: From the autonomy of research ethics committees to the autonomy of lay people; Antonio Casado da Rocha -- Public deliberation and the role of stakeholders as a new frontier in the governance of science: the British Columbia Biobank Deliberation and the DePGx Project; Claudio Corradetti, Gillian Bartlett -- Making researchers moral; Linus Johnsson, Stefan Eriksson, Gert Helgesson, Mats G. Hansson.
590			_aPara consulta fuera de la UANL se requiere clave de acceso remoto.
700	1		_aMascalzoni, Deborah, _eeditor. _9372372
710	2		_aSpringerLink (Servicio en línea) _9299170
776	0	8	_iEdición impresa: _z9789401795722
856	4	0	_uhttp://remoto.dgb.uanl.mx/login?url=http://dx.doi.org/10.1007/978-94-017-9573-9 _zConectar a Springer E-Books (Para consulta externa se requiere previa autentificación en Biblioteca Digital UANL)
942			_c14
999			_c325850 _d325850